How cool is this, I have snow on my blog! Only virtual snow mind, no sign of the real thing here but veeeeery chilly.

I went for a 10 min run this morning – my legs are okay with that. Think I may have to mentally divide the marathon up into a set of 10 minute runs. I dread to think how many that will be.  Please don’t tell me!

On the plus side though, a big thumbs up to Nando’s for their hot peri-peri crisps. I reckon a combination of eating them and running (not at the same time though) has stopped the cold I was developing in its tracks. Love you, Nando’s…want to sponsor me??

Seriously though, if you’re thinking about sponsoring me but not sure that the money will have a positive impact, please read this from the DebRA website:

Mason was born in September 2008 and is an engaging, happy child with beautiful bright blue eyes. He smiles at you from photos and the only hint that something is wrong are the sores on his face and bandages under his clothes. But Mason has a serious, painful and life threatening condition called Recessive Dystrophic EB.

Recessive Dystrophic EB is a condition that won’t get better and can’t be cured. Mason’s skin and internal body linings blister at the slightest knock or rub, causing painful, open wounds. When he was born, the skin was missing from the whole of his right foot and leg and the top of his left foot. To help get a diagnosis, the hospital emailed photos of Mason’s body to Jackie Denyer, a specialist EB DebRA nurse at Great Ormond Street Hospital, who confirmed that it was EB but a biopsy was needed to establish which type of EB Mason had.

This was a particularly difficult time for his parents, Kerry and Rod, as the results took over two weeks to come through and they couldn’t touch or cuddle Mason too much. Kerry tells us: “After carrying a baby for nine months, it’s heart breaking not to be able to hold your baby in your arms. That two and a half weeks felt like a lifetime.”

Jackie, the specialist EB nurse, is now like a friend of the family and has helped the Whites through some very difficult times. The severity of Mason’s condition means that he has already been critically ill after the lining of his oesophagus came away. He now cannot swallow food, fluid or medication and he has to be fed through a Gastrostomy button in his stomach. If Mason tried to eat or drink anything in the normal way it would go into his windpipe and down to his lungs. Mason also has to cope with sores and blisters that constantly form on his skin, his body is bandaged and he lives a routine of lancing blisters, bandaging, coping with the pain and making regular trips to hospital.

Mason is featured in the BBC Lifeline appeal for DebRA that was shown on Sunday 21st November. You can watch it online here – I won’t say anything else as it speaks for itself. If you’d like to donate, please go to my fundraising page:

Every penny I raise will go directly to DebRA and if you are donate online and you are a UK taxpayer we can claim giftaid too. Please donate, then sit back and feel good about yourself knowing that you’ve done something great. It doesn’t have to be a huge amount; £1 from everyone who reads this could make a big difference.

This entry was posted in DebRA, Fundraising, Marathon, Running, Training and tagged , , , , , . Bookmark the permalink.

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s